Discov Med 12(62):41–55PubMedCentralPubMed McGuire AL, Caulfield

Discov Med 12(62):41–55PubMedCentralPubMed McGuire AL, Caulfield T, Cho MK (2008) Research ethics and the challenge of whole-genome sequencing. Nat Rev Genet 9(2):152–156PubMedCentralPubMedCrossRef McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC (2013) Point-counterpoint. Ethics ARS-1620 datasheet and genomic incidental findings. Science 340(6136):1047–1048PubMedCentralPubMedCrossRef Meulenkamp TM, Gevers SJ, Bovenberg

JA, Smets EM (2012) Researchers’ opinions towards the communication of results of biobank research: a survey study. Eur J Hum Genet 20(3):258–262PubMedCentralPubMedCrossRef Middleton A, Robson F, Burnell L, Ahmed M (2007) Providing a transcultural genetic counseling service in the UK. J Genet Couns 16(5):567–582PubMedCrossRef Middleton A, Patch C, Wiggins J, Barnes K, Crawford G, Benjamin C, Bruce A (2014) Position statement on opportunistic genomic screening from the Association of Genetic Nurses and Counsellors (UK and Ireland). Eur J Hum Genet.

doi:10.​1038/​ejhg.​2013.​301 PubMed Morris Z, Whiteley WN, Longstreth WT Jr, Weber F, Lee Y-C, Tsushima Y, Alphs H, Ladd SC, see more Warlow C, Wardlaw JM, Salman RA-S (2009) Incidental findings on brain magnetic resonance

imaging: systematic review and meta-analysis. BMJ (Clin Res Ed) 339. doi:10.​1136/​bmj.​b3016 Captisol clinical trial MRC & WellcomeTrust (2014) Framework on the feedback of health-related findings in research Offit K, Groeger E, Turner Metalloexopeptidase S, Wadsworth EA, Weiser MA (2004) The “duty to warn” a patient’s family members about hereditary disease risks. JAMA 292(12):1469–1473PubMedCrossRef Ormond KE, Wheeler MT, Hudgins L, Klein TE, Butte AJ, Altman RB, Ashley EA, Greely HT (2010) Challenges in the clinical application of whole-genome sequencing. Lancet 375(9727):1749–1751PubMedCrossRef Otlowski M (2013) Australian reforms enabling disclosure of genetic information to genetic relatives by health practitioners. J Law Med 21(1):217–234PubMed Paulsen JS, Nance M, Kim J-I, Carlozzi NE, Panegyres PK, Erwin C, Goh A, McCusker E, Williams JK (2013) A review of quality of life after predictive testing for and earlier identification of neurodegenerative diseases. Prog Neurobiol 110:2–28PubMedCrossRef Ross LF, Rothstein MA, Clayton EW (2013) Mandatory extended searches in all genome sequencing: “incidental findings,” patient autonomy, and shared decision making.

Comments are closed.